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Gerard Butler GALS
Swansong

Alzheimers Confirmed

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Hi Swannie,

I'm so sorry to hear that your husband is ill and that you are also unwell. I don't know if it helps, but I just wanted to post this link for you about vitamin B12 deficiency. Some of the symptoms of this deficiency seem to be similar to what you describe your husband is experiencing.

http://vitamins.lovetoknow.com/Signs_of_Vitamin_B12_Deficiency

I thought this was particularly concerning

"Alzheimer's Disease Mistaken for Vitamin B12 Deficiency

Research has found that a vitamin B12 deficiency at times develops into a neurological dysfunction of memory loss, poor cognitive function and dementia. In certain cases, these symptoms of vitamin B12 deficiency are practically indistinguishable from Alzheimer's disease and senile dementia.

Medical professionals know that the elderly population has a higher risk factor for vitamin B12 deficiency. It is essential that a proper diagnosis is made to ensure patients suffering from a B12 deficiency are not misdiagnosed with Alzheimer's."

Hope your husband gets better soon Swannie and that your own health is much improved.

Regards

Robyn

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Swannie, I am so sorry to hear that both your and Bill's problems have worsened. I hope that you will get

your own problems taken care of because when you feel better physically it makes it easier to cope with

all the rest.

You have gotten some very good advice. I am Bill's age, and I have become so frustrated with what is just

simply memory loss with age. I usually do have recall of most everything, but not in a timely manner. Don

is a truck mechanic and at 68 is still choosing to keep on working. I can see big changes in him over the

last few years and honestly, I worry about his slowed thinking process. He has always been one to think,

and then act or speak. That is just slowed down a little, but I do worry how that will go as time continues

to march on.

Anway, we all love you and are praying for you, Bill and Nathan--just a part of my regular prayers. Just know

you have many friends who care and are here for support whenever you need it.

Hugs and prayers,

Judy

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Swannie, Del makes a good point as well as the others. So many issues involved here of which diet could be one. As the doctors rule out medical issues via medical tests hopefully an answer will surface as to what exactly it is that ,Bill, is suffering from. Right now it sounds as if you're both overwhelmed right fully so. Could be something as simple as ,Bill, needing magnesium. From time to time our bodies need a tune up just like a car might. I'm going to a nutritionist as I felt my body was trying to tell me something. She has given me supplements and they have helped me feel stronger in body and mind. So many avenues to go down hopefully one of them will be the key that unlocks the door to Bill's health improvement. You're both in my good thoughts and payers and I pray an answer will surface soon and healing can begin to take place. Fondly,

Janet

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Swannie, your and Bill are in my prayers. I hope the doctors find an answer soon.

I know this has to be frustrating to Bill, and so depressing for you.

Most important, take care of yourself so that you can take care of Bill.

I'm praying for you both.

Sandy

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Thank you, friends, for the advice, kind thoughts and prayers. Bill has been tested for all the issues being mentioned. He underwent extensive blood work and other tests to rule out causes and other diseases that might be impacting his cognitive function.

Delene, he was treated for depression (due to the onset of type 2 diabetes) about 10 years ago, and stayed on the medication until 2 years ago. Given that he went through a series of specialized testing with a neuro psychologist, wouldn't she have recognized severe depression?

Her findings were that he has cognitive impairment. She did not recommend medication or treatment of any kind.

This is why I am so frustrated.

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Thank you, friends, for the advice, kind thoughts and prayers. Bill has been tested for all the issues being mentioned. He underwent extensive blood work and other tests to rule out causes and other diseases that might be impacting his cognitive function.

Delene, he was treated for depression (due to the onset of type 2 diabetes) about 10 years ago, and stayed on the medication until 2 years ago. Given that he went through a series of specialized testing with a neuro psychologist, wouldn't she have recognized severe depression?

Her findings were that he has cognitive impairment. She did not recommend medication or treatment of any kind.This is why I am so frustrated.

Swannie, that sounds like you have a diagnosis then. It's called MCI, mild cognitive impairment. Here's a link that might help you.

http://www.mayoclinic.com/health/mild-cognitive-impairment/DS00553 - 38k

It sounds like to me that you need to find an outlet for your worries and concerns regarding Bill's condition more then being confused or frustrated over not having the answers. You are obviously rightfully worried and angry and sounds like you have the medical answer, or as much as is humanly possible to give you, and now it's all about coping with it for you and for Bill. Perhaps your next step would be some form of counseling for the two of you so that you both can cope better and deal with whatever comes. On the upside, this could be something that abates with time or at the very least, never worsens, so keep the faith!

Keep your chin up, Swannie!

Delene

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Swannie, thanks for the updates! I understand the frustration you must be feeling... I join the others in saying that you and your hubby are in my thoughts and prayers :-)

Veronica :-)

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Swannie, we've just become acquainted and I'm so sorry to hear about your DH. I will lift you both in prayer but I know that your faith is strong. We're all family on Gals, so please let us know if we can help in any possible way.

Love,

Buf

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Today has been a very sad day. I think Bill is now fully realizing just how much he is losing. He's very depressed and the anxiety has gotten much worse. I try to encourage him to do the things he can still do, but he is so defeated. It's not just loss of memory now. It's how he functions in many areas. I know the time is coming when he will have to face the truth, but right now he can't. I'm thankful he still knows who we are and has not wandered off or anything, but he is starting to lose some very precious memories of our lives together. This hurts so much. I've tried to talk him into going back to the neurologist to see about medication for mild dementia, but he won't hear of it. Need your prayers.

Swannie

Edited by Swansong

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Swannie, I'll pray he will accept the medication because I've heard some positive things about the effectiveness. That is such a heartbreaking condition.

Love,

Buff

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Oh Bonnie, I'm so sorry you and Bill and Nathan have to go through this. I am praying for you all.

Lord, I lift up Bonnie to you Father. Comfort her and give her a peace that surpasses our understanding. Help her to keep her trust in You even though this is not the way she would have her life be. Help her to trust that You have hers and Bill's and Nathan's good in mind, that You know the beginning from the end and so You know why this is happening and You are allowing it to happen but that You will love them and keep them every step of the way and in the end it will be for their good and for Your glory. Be with Bill Lord, hold him close to Your heart and pour Your grace on him. Lord, if it be Your will, restore to Bill his memory and heal him. But if for some reason You do not than I ask that You keep his spirit whole and that he can find contentment and peace and not be frustrated and discouraged until he goes home to be with You. Focus his eyes on those things that are eternal and lift this depression from him. I also pray for Nathan....pour your grace on him and give him the love and the wisdom and the strength to be all that his parents need him to be now. I ask this in Your name Jesus. Amen.

Posted Image

Sending love and comforting hugs to you Bonnie...

Sue

Posted Image

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AMEN, Sue!! What a beautiful prayer of love and support...

Swannie, may the grace of God surround you and your family in this trying time... There is a chorus we always sang at church, and the words are so true...

"God will make a way,

Where there seems to be no way,

He works in ways you cannot see..."

So, just let go, and let Him make a way for you, and especially for Bill!!

Much love!!

Veronica Posted Image

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Swannie,

My thoughts and prayer are with both you and your beloved Bill! I will keep you all....Nathan too in my daily prayer vigils.

Hugs, Poppy

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Bill had a break down today. I think he finally realizes that this is more than mild cognitive impairment. He woke up feeling very "off" this morning and we had another talk. I've made an appointment to see the neurologist again. It's funny how my other family members are reacting to this. If I had told them that my Bill had been diagnosed with cancer, there would be sympathy and offers of help...but all I get from them is: "You have to be strong."

Why? Because he doesn't look or act sick. If they spend a few minutes with him, he doesn't seem too bad off mentally, maybe a little spacey. But the truth is, dementia is a terminal illness that kills the brain and the body, and little by little the "person" who is my beloved husband, dies. Sure,, he could live 20 more years...but "he" won't be there.

Don't tell me to think positively, because there IS no positive about this. Then there are all the practical considerations. Can't even go there.

There truly is shame and confusion attached to dementia, and it makes the loved one (me) of the person with dementia feel completely alone.

Swannie

Edited by Swansong

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Oh Bonnie..I really do know what you're going through cuz I've had three relatives be struck with Alzheimer's...my maternal grandfather, my maternal great aunt and my paternal grandmother. It's unbearably horrible for both the people struck with dementia/Alzheimer's and those around them who are completely helpless. All I can is pray for you and Bill. HUGS!!! :grouphug:

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I'm sure it's hard to be positive when you see him go through this... Then, you have to deal with all the emotional turmoil of dealing with those people who don't see what you see...

Be sure to make some quality time for yourself... To recharge those batteries. You seem like a strong lady Bonnie... You are sweet and I hate to see you go through this!

What can I (or we) do to help out? You can vent with us anytime at all...

Veronica :-D

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I'm sure this is very difficult for both of you. He must be afraid. The thought of slowly losing yourself is frightening to me. To not be able to remember the things that you love & bring you joy. I'm also sure that it is very difficult for you as well, to cope w/ the long-term loss, as well as just the daily frustration.

My grandfather was not diagnosed w/ Dementia or Alzheimer's, but surely experienced something very similar and you are right. He was alive for many more years, but I lost my grandfather & my mother lost her father many years before he actually passed.

It's heart-breaking & very stressful & not something that you can resolve. I don't know what to do, but take it a day at a time. Perhaps speaking w/ others who have gone through this experience might be helpful, possibly for advice or just as an outlet w/ someone who would understand what you're going through.

Your in my prayers.

Ren

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I appreciate the prayers and kind words. Got 2 hours of sleep after hot flashing all night long. Finally gave up and here I am awake.

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After another trip to the neurologist, Bill is now on eflexor, a medication that slows down the progression from Mild Cognitive Impairment to Alzheimers Disease. He will be seeing a specialist in a about a month.

Of course I have been aware of my husband's memory issues for 5 years now, but yesterday it all came to a head and it seems that it finally hit Nathan what is actually going on with his dad. We had a 3 way hug of crying and affirming our love for each other as a family. Nathan actually hugged me, and it was wonderful. As an 'Aspie', hugging is VERY difficult for him, so it meant a lot.

Please keep us in your prayers. And please pray especially that God will give me the grace to keep a positive outlook throughout the changes that are coming.

Swannie

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